Landen

My name is Landen. I am nine years old, and am in fourth grade at McAllister Elementary in Sherrill, NY. I am a very normal nine-year-old boy. I like to play soccer, video games, and hang out with my friends. But I am also different because of my disease, called XIAP deficiency, an autoimmune disease which has weakened my immune system.

I know that the doctors are working hard to help me feel better

Carrick spent nearly 60 nights in the hospital between May 6th and August 3rd. He endured multiple surgeries, injections, CT scans, X-rays, PET scans, IVs, PICC lines, 27 days of multiple IV chemo drugs, mouth sores, painful dressing changes, a reopened surgical incision, IV nutrition, drains, lumbar punctures and blood transfusions. His young body endured more treatment in three months than most people experience in a lifetime.

We watched our baby, so scared from illness and painful procedures, remain incredibly brave through it all. I still cry thinking of his tiny, pale, skinny body lying on that hospital bed, quietly accepting his treatment. 

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